tag:blogger.com,1999:blog-5441989712918579133.post7890881942876794017..comments2024-01-26T03:49:33.080-05:00Comments on Rarer in Girls...My Daughter with Autism: What I wish I'd been toldSuzannehttp://www.blogger.com/profile/08240262747073351481noreply@blogger.comBlogger7125tag:blogger.com,1999:blog-5441989712918579133.post-29834704369781718692013-03-13T21:30:33.253-04:002013-03-13T21:30:33.253-04:00I too have a daughter (Katy - age 10) and feel a l...I too have a daughter (Katy - age 10) and feel a lot of what you are saying here. Katy too will always need a significant support structure around her, for the rest of her life. That's probably true, but she is happy, she is loved, and she is just in awe of the world around her (I love this aspect of who she is). I don't let other's measures for success become Katy's measure for success. It's hard at times though, right? I certainly have had to lean on my faith and my family more sense Katy was diagnosed, but this is a good thing. <br /><br />Off my soap box now. You should be proud of Janey looks like a lovely child. Katy could use more friends like her. You are an inspiration to me. Thank ou for sharing your journey with us. Anonymoushttps://www.blogger.com/profile/04613288103418776456noreply@blogger.comtag:blogger.com,1999:blog-5441989712918579133.post-62131000868335413332013-03-02T06:30:29.673-05:002013-03-02T06:30:29.673-05:00That is a great way to read blogs such as that one...That is a great way to read blogs such as that one---not as something to relate to, but as a piece of that author's life right then. It's a kind and helpful way to view them---thanks for that. I can just mentally edit out the implications that they speak for all parents, and think of it as them speaking for themselves. And it really is important to keep in mind the difference between what is written publicly and the actually day to day. We all edit our lives before making them public. I try to do so pretty little, but of course there are things that never make the blog! You really made me think---thanks!Suzannehttps://www.blogger.com/profile/08240262747073351481noreply@blogger.comtag:blogger.com,1999:blog-5441989712918579133.post-72347736133792913492013-02-28T22:07:01.442-05:002013-02-28T22:07:01.442-05:00ETA: I missed a big chunk of my response due to cu...ETA: I missed a big chunk of my response due to cutting and pasting :D LOL!<br /><br />I absolutely agree with you, Suzanne! We each write our own letters - and we are allowed to change the text as we and our children change!<br /><br />The article you linked bothers me because it seems to be another example where it lumps all parents of children with autism in one or two categories. If we aren't "amazed" at our child's progress ("the hidden genius") , we must be wringing our hands in despair about our situation (we [parents], "the martyrs". <br /><br />The truth is, much like you described, things ebb and flow. And just as there are so many facets of autism ("if you know one child with autism, you know *one* child with autism"), how a parent reacts/responds to and parents his or her child with autism is an individual journey as well.<br /><br />I would never say that I speak on behalf of all (or any other!) parent of a child with autism, so I don't read articles such as the one you linked as if it should resonate with me. Sometimes, an author/parent will be in sync with my situation and I can relate. I read, digest, and compare. But in those instances where there is a disconnect with our situation, I take it as this other person's journey. Maybe someone else will be able to relate, but it's okay for the author to share….maybe it will resonate with someone else.<br /><br />I think part of it is sometimes these articles chip away a little at the confidence I had to build in raising my own child with autism. Many of these authors seem so confident and so sure…but like many bloggers, I think there is the side that is their reality day to day and the side they "present". Our job is to bring out the best in our children and make them the best they can be - on their own terms :)audballhttps://www.blogger.com/profile/17499068870667071905noreply@blogger.comtag:blogger.com,1999:blog-5441989712918579133.post-33756136412947171392013-02-28T22:04:41.937-05:002013-02-28T22:04:41.937-05:00This comment has been removed by the author.audballhttps://www.blogger.com/profile/17499068870667071905noreply@blogger.comtag:blogger.com,1999:blog-5441989712918579133.post-78375285032438906742013-02-28T18:01:17.915-05:002013-02-28T18:01:17.915-05:00I shouldn't read that blogger, because I have ...I shouldn't read that blogger, because I have the same reaction. She makes me feel like a horrible person. But I compulsively read the blogs I've put on my list lately. I agree with Antti too. That's a great way to put it---Janey is my greatest comfort.Suzannehttps://www.blogger.com/profile/08240262747073351481noreply@blogger.comtag:blogger.com,1999:blog-5441989712918579133.post-57711305759372903772013-02-28T16:32:01.875-05:002013-02-28T16:32:01.875-05:00I cannot read that particular blogger. I don'...I cannot read that particular blogger. I don't know what it is, but she always makes me feel terrible about myself as a mother, nearly every time. I am doing my best to get through every day. Some days are easier than others. I agree with Antti. Lindsey is also my greatest comfort. mknecht24https://www.blogger.com/profile/17819582073139000178noreply@blogger.comtag:blogger.com,1999:blog-5441989712918579133.post-28747376157828485882013-02-28T09:33:11.290-05:002013-02-28T09:33:11.290-05:00You remind me of the days we got the diagnosis, ho...You remind me of the days we got the diagnosis, how the greatest comfort came from our son himself.Anttihttps://www.blogger.com/profile/03698236723394477310noreply@blogger.com