tag:blogger.com,1999:blog-5441989712918579133.post7728728587181901467..comments2024-01-26T03:49:33.080-05:00Comments on Rarer in Girls...My Daughter with Autism: All Are Welcome---except, of course, when they aren'tSuzannehttp://www.blogger.com/profile/08240262747073351481noreply@blogger.comBlogger6125tag:blogger.com,1999:blog-5441989712918579133.post-87195409729141031732017-04-12T16:34:18.057-04:002017-04-12T16:34:18.057-04:00I am on your fb group and I love it. I haven't...I am on your fb group and I love it. I haven't posted anything yet but have gotten so much out of it! Thanks for your response. It can be defeating when there are countless programs for high functioning and I feel exactly the same that no one is like Nyla. I would not say that if that wasn't my experience, also why I was so glad to come across your blog! I have thought probably at least once a day for 14 years that she is in our family for a reason and I know a big one is to push me and get me to build and strengthen those traits that are not natural, like making a fuss or "fighting". But in a good way :) Have come a long way indeed but still a struggle and have to remember who I'm fighting for. It isn't about me and how comfortable I am.<br />Lauriehttps://www.blogger.com/profile/04669739246897222132noreply@blogger.comtag:blogger.com,1999:blog-5441989712918579133.post-43678854252996750422017-04-12T07:36:39.280-04:002017-04-12T07:36:39.280-04:00Laurie, I understand exactly what you are saying! ...Laurie, I understand exactly what you are saying! People say too that I am a fighter, and I'm not, in any way, and it's just like you said---if I know something is going to be a fight, I feel sick. I dread it. And it's like you said---not a nasty fight, even just an effort to get what is needed, even just mild insisting. I do it if I have to. I think what I can be is determined, but not a fighter or warrior or any of those traits I feel like I'm "supposed" to have. Angry and hopeless is exactly how I feel after looking for programs. Angry because if Janey were 99% of kids, there would be literally thousands of options in our area, and hopeless because I don't feel up to doing what needs to be done to find even one option that works. If you aren't on the Facebook group, I hope you join---I'd love to talk to you more! Thanks for your kind words!Suzannehttps://www.blogger.com/profile/08240262747073351481noreply@blogger.comtag:blogger.com,1999:blog-5441989712918579133.post-29334399159035493502017-04-11T22:17:13.137-04:002017-04-11T22:17:13.137-04:00I have just been dealing with this myself. It is g...I have just been dealing with this myself. It is getting near impossible to find outside programs for my daughter, 14 and low functioning. I had quite an angry and hopeless morning researching summer programs and camps. There is one that looks good that I had not seen before but then I get anxious that it won't be as "inclusive" as they make it sound. She has physical limitations as well that compound the problem. Lots of programs have pictures of kids in wheelchairs but upon further study, they really aren't equipt to handle such situations even if I were to stay and be with her the whole time. I understand, I really do, but does not make it less frustrating. She loves adventure, activity, etc. but needs a lot of help and weighing in at 115 lbs, if she is having a stubborn day good luck! I get so depressed thinking of how much we used to do with her before puberty. Everything and she loved it! Now, it is so laborious that even her interest has depleted. Seeing things that gave her so much joy now irritate her is the worst kind of pain to witness. Sorry, having an angry rant kind of day myself! Interesting you say you are not a fighter, I feel the same way but then everyone begs to differ. That makes me feel better but it takes a lot out of me to demand things and that seems to be the norm now. So when I embark on something like this, my stomach gets a huge knot knowing that a fight is coming. Not a nasty fight with someone in particular, just the effort it will take to reach the desired outcome. I don't know if this makes sense, I suspect it does. Love your posts! ALwaysLauriehttps://www.blogger.com/profile/04669739246897222132noreply@blogger.comtag:blogger.com,1999:blog-5441989712918579133.post-50331342357862610312017-04-10T14:53:22.328-04:002017-04-10T14:53:22.328-04:00That sounds like a great program! None in New Eng...That sounds like a great program! None in New England, though...I found a link to it...<br /><br />http://www.nathanielshope.org/events-programs/buddy-break/locations-and-dates/Suzannehttps://www.blogger.com/profile/08240262747073351481noreply@blogger.comtag:blogger.com,1999:blog-5441989712918579133.post-79894471822368349452017-04-10T14:33:23.575-04:002017-04-10T14:33:23.575-04:00Someone we know from a local church contacted us a...Someone we know from a local church contacted us about my son going to something called Buddy Breaks. They have it once a month but not in summer. But they try to make the child be king for a day and provide one on one attention for whatever the child wants to do. Like if my son just wants to turn lights on and off they make a game of it. They do have to do some sort of training to be able to have this. my son loves going, maybe something to see if they have in your area. Good luck.bikermom3https://www.blogger.com/profile/14662735255741038101noreply@blogger.comtag:blogger.com,1999:blog-5441989712918579133.post-72341194261589588152017-04-07T22:15:08.390-04:002017-04-07T22:15:08.390-04:00Thankyou for voicing what many of us feel. I too h...Thankyou for voicing what many of us feel. I too have a 12 yr old low functioning autistic child. She is rejected at most special needs places because she isn't able to use the restroom unsupervised. They are more than willing to allow aspie kids and high functioning autistic kids join their camps and social groups , but not my Emily. We are left out of the fun. We don't fit the acceptable kind of special needs. Kinda sucks. But I will not let it diminish her life. She has value. Even if i am the only one that sees it.Anonymoushttps://www.blogger.com/profile/10274068319012471996noreply@blogger.com