tag:blogger.com,1999:blog-5441989712918579133.post5997530219280792371..comments2024-01-26T03:49:33.080-05:00Comments on Rarer in Girls...My Daughter with Autism: Sleep, Depression and all that jazzSuzannehttp://www.blogger.com/profile/08240262747073351481noreply@blogger.comBlogger4125tag:blogger.com,1999:blog-5441989712918579133.post-51139837991131664932013-05-27T14:45:59.418-04:002013-05-27T14:45:59.418-04:00Last good night sleep i got was over 8 years ago b...Last good night sleep i got was over 8 years ago before mys on was born, but its nothing compared to what you must go through every night on top of the entire day...not fun. its amazing you still have your sanity intact, keep strong, you are an amazing role model!House Of D.https://www.blogger.com/profile/07923772187417571612noreply@blogger.comtag:blogger.com,1999:blog-5441989712918579133.post-22708523376060295692013-05-07T07:09:07.300-04:002013-05-07T07:09:07.300-04:00Janey is pretty independent during her night wakin...Janey is pretty independent during her night wakings, except for constantly asking for food! I think the safe room idea would work, but we don't have a room for it. We have a strange housing situation in that we live on one floor of a very big Victorian house. Our own floor is small, way too small for 3 kids, but we also use the 3rd floor (we are on the first floor) That gives the boys enough room, but it doesn't help with Janey having room! I think a room like that on our main living level would help tremendously, and you've inspired me to think about some creative rearranging once both boys are in college a few years from now!Suzannehttps://www.blogger.com/profile/08240262747073351481noreply@blogger.comtag:blogger.com,1999:blog-5441989712918579133.post-43088830880401575242013-05-06T22:56:04.574-04:002013-05-06T22:56:04.574-04:00I'm sorry to hear about your health issues; th...I'm sorry to hear about your health issues; that must have a huge impact on your being able to get through the day with minimal sleep. I suppose you have tried all the typical things for kiddos who have issues sleeping (melatonin, long walks/physical activity, etc.). I know brains are wired differently; ASD kids have very different sleep patterns! <br /><br />I was curious about your keeping up to make sure Janey is safe. Is she pretty "independent" during these early morning wake-ups (meaning, does she need you to engage with her all the time, or is she okay watching tv)? Would it make sense to set up a safe room - one cozy room that has just the tv, lots of pillows, and fluffy blankets - where both you (and she) can nod off and you wouldn't have to worry about her? Maybe you can have a set of pre-made snacks for her nearby, so you wouldn't have to go to the kitchen? I keep thinking about how terribly exhausting it must be to sleep with one eye open :(.audballhttps://www.blogger.com/profile/17499068870667071905noreply@blogger.comtag:blogger.com,1999:blog-5441989712918579133.post-16284680922652376442013-05-05T19:03:21.556-04:002013-05-05T19:03:21.556-04:00It sounds like a tough weekend! I am one of those ...It sounds like a tough weekend! I am one of those people that can go on very few hours of sleep, without much side effect (haven't had a full night of sleep in 10 years it feels like, lol). But with your health issues I think it must be totally different. I am remembering how exhausted I feel when have the flu or when I was pregnant, and I guess you sort of feel like that all the time... That's hard. Take all the breaks you can and enjoy them. You need to be gentle with yourself and your health. <br />Hugs!Sophie's Trainshttps://www.blogger.com/profile/07774177895296697594noreply@blogger.com