tag:blogger.com,1999:blog-5441989712918579133.post7782545152612131246..comments2024-01-26T03:49:33.080-05:00Comments on Rarer in Girls...My Daughter with Autism: "What happened?"---the picturesSuzannehttp://www.blogger.com/profile/08240262747073351481noreply@blogger.comBlogger8125tag:blogger.com,1999:blog-5441989712918579133.post-43484816822523040472013-04-18T21:28:04.242-04:002013-04-18T21:28:04.242-04:00We are going through this with my girl right now, ...We are going through this with my girl right now, she's young, 13 months. But, what you describe sounds a lot like Retts Syndrome. I don't know if you've had Janey tested. We are going to get my Mena tested next month. I Just think your story sounds like so many women who parent Retts girls, who have helped me. <3Our Catholic Familyhttps://www.blogger.com/profile/01216208210775433029noreply@blogger.comtag:blogger.com,1999:blog-5441989712918579133.post-54420770997513798702013-01-09T07:45:50.123-05:002013-01-09T07:45:50.123-05:00Most of the time I do pretty well with not beating...Most of the time I do pretty well with not beating myself up over what it was that made Janey autistic. I might be "lucky" in that way that she was so late in regressing. It wasn't near the time of any major shots, so I didn't have that thought. But all the things you all mention---Tea Mommy, you've read my mind!---have been in my mind at one time or another. I've done just what you said, Sakurafleur---looked through all the pictures to try to pinpoint the moment the eyes changed. It's a very heart-wrenching thing to do. I am very lucky that Janey was absolutely our last child. I can imagine how you feel with Jacob, Michelle! I would be exactly the same, although he does absolutely sound like a poster child for not being autistic! But I know that doesn't change the fears. So good to have all of you to talk to.Suzannehttps://www.blogger.com/profile/08240262747073351481noreply@blogger.comtag:blogger.com,1999:blog-5441989712918579133.post-87420764289962244862013-01-08T21:35:25.753-05:002013-01-08T21:35:25.753-05:00I know how you feel. I don't think now about ...I know how you feel. I don't think now about how Olivia was - it's too painful. When I was told she could have Autism, I spent months looking and looking through videos to try to see when the exact moment was that she changed. I think I see it. Her eyes became less engaged. A little more empty. I now just kid myself that maybe this is how she came into the world, but I know she didn't. She was a bright and happy baby. I think it was the shots she got at 11 months. I think it tipped her over the edge. I beat myself up for a very long time. I am so sorry you went through this too. It's so hard.Sakurafleurhttps://www.blogger.com/profile/14592455923099853858noreply@blogger.comtag:blogger.com,1999:blog-5441989712918579133.post-70571051676282226352013-01-08T07:59:51.137-05:002013-01-08T07:59:51.137-05:00@Tea Mommy Our 15 yo daughter is NT. Our Lindsey...@Tea Mommy Our 15 yo daughter is NT. Our Lindsey is 13 and ASD. Jacob is 3 and NT and probably the least autistic person in our house. lol I still worry every day about him. We waited 10 years to have a third child because Lindsey's autism has significantly impaired her. I didn't want another child to go through that.mknecht24https://www.blogger.com/profile/17819582073139000178noreply@blogger.comtag:blogger.com,1999:blog-5441989712918579133.post-84099462715866110092013-01-08T01:16:47.295-05:002013-01-08T01:16:47.295-05:00@mknecht24-
I couldn't help but read your comm...@mknecht24-<br />I couldn't help but read your comment about Lindsey & Jacob. Is Jacob a little brother? My daughter has a younger brother (9 months old) and I worry about him every day as well. Don't know if that's what you are referring to or something completely different. Best to you and your family on your journey :)1 out of 64https://www.blogger.com/profile/16270895599236462343noreply@blogger.comtag:blogger.com,1999:blog-5441989712918579133.post-78555085223811834842013-01-08T01:12:29.898-05:002013-01-08T01:12:29.898-05:00Please don't do this to yourself. I understan...Please don't do this to yourself. I understand, and completely relate. Just please try not to go down this path right now. I have tears in my eyes for you and wish I could hug you. Unfortunately I can't pinpoint a moment where Willow "became" autistic. I honestly believe in my family's case it's all speculation. My husband (who has been a FT SAHD since Willow's birth) insists she was since birth (even though we were completely in denial about it until right before her diagnoses, and still somehow on some level are). I can relate to the overwhelming feeling of needing to know. So many nights I've not been able to sleep wondering "was it the time I ate fresh mozz cheese? or the ONE time I took the prescription that my doctor told me was safe for pregnancy when I had a horrible migraine? or was it the decaf tea I drank??? Or was it because of the time I got horribly sick & couldn't stop vomiting? Or the fact that I didn't nurse as long as I wanted to? Or has giving her casein & gluten made it worse? Could TV have jump-started it? Is it because of my thyroid condition? Or my FMS? Or was it all the fear I had for my unborn child when I was carrying her that did it? Sounds silly to look at in writing but it couldn't be less true, that I have wondered these things more times than I can count. I understand the overwhelming desire to know why or how but sometimes for the sake of our sanity, we just have to let that go, even if it is just for a short period of time.1 out of 64https://www.blogger.com/profile/16270895599236462343noreply@blogger.comtag:blogger.com,1999:blog-5441989712918579133.post-16089882508872721562013-01-07T13:46:57.017-05:002013-01-07T13:46:57.017-05:00I have to admit...this was tough for me to read. ...I have to admit...this was tough for me to read. Not because of Lindsey. She was autistic from day one. Jacob...my fear for him will never go away. Everyday I worry. My heart goes out to you. I wish I could make it better for you. We just have to keep going forward.<br /><br />On a lighter note, I really think we have a distant relative somewhere. I'm going to send you a baby picture of Lindsey. She could be Janey's sister.mknecht24https://www.blogger.com/profile/17819582073139000178noreply@blogger.comtag:blogger.com,1999:blog-5441989712918579133.post-39358843754507398952013-01-06T19:26:22.565-05:002013-01-06T19:26:22.565-05:00I know exactly, exactly what you mean :( Sophie...I know exactly, exactly what you mean :( Sophie's regression is still relatively recent and I find myself going, "a year ago she wasn't autistic". I still have envelopes from picture developing shops which I cannot sort through and put into an album. After we realized she was autistic I had to dump my phone pics into the computer- I couldn't bring myself to do it for months until my phone was so full it would freeze up with every operation. I miss hearing her voice too. Her "new" voice is rough, guttural. It is not the sweet toddler girl voice you would expect. We love her to death of course. But what the hell happened indeed. Sophie's Trainshttps://www.blogger.com/profile/07774177895296697594noreply@blogger.com